Carpe Diem.
A few months ago, my world stopped rotating on its normal axis. For a heartbeat, everything stopped, and then it all turned upside down.
On January 7th, the amazing man I married more than 54 years ago suddenly passed away.
I thought we had more time. Not that he was in perfect health by any means. He had two types of blood cancer. He was diagnosed with Multiple Myeloma about eight years ago, and underwent chemo and drug therapy, a collection of bone marrow (while in remission) for a possible future transplant if needed, and endless monitoring tests. He was tolerating treatment well with some normal (but frustrating) side effects, and was still engaged in most of his normal activities. He and one of his brothers even took a trip, driving across the country together.
Then, almost two years ago, he was also diagnosed with ALL, a form of leukemia. We were referred to a larger affiliated hospital (where they have a separate hematology oncology department) two hours from our small town’s rural hospital, to begin a new treatment regimen. A day after the initial treatment, we were able to come home. He was OK the first day back, but on the next day, he started having a-fib (atrial fibrillation, an occasional and treatable problem for him for years), and his normal medication didn’t correct it. We went to the ER of our local hospital, and I watched the doctors try unsuccessfully to wrangle his heart back to a normal rhythm. Then they began to see signs of infection and other issues. We were told he was septic and had to be transferred to a larger hospital immediately, as he need needed resources our smaller hospital couldn’t provide. He was airlifted to the hospital where he had been treated for the ALL, while I drove to get there.
I will pause here to say that the staffs at both hospitals were wonderful, even as COVID was still a big concern. And the airlift crew was amazing. I have since learned from almost every medical professional I have spoken with, that these transport crews are some of the best trained and most skilled emergency medical crews anywhere.
By the time I was able to see him. my sweet husband was in the ICU with all kinds of machines and ports connected to him. He was sedated and in and out of consciousness. He was in that hospital for nearly seven weeks. Every morning (except the one day a week I went home to pick up mail and run some errands before driving back) we met with a team of specialists – oncology, cardiology, nephrology, etc. One by one, his organs responded to treatment. He was able to eat real food and start physical therapy to regain strength. Two of our children were able to visit, and really gave him an emotional boost. Finally, after almost two months, he was upbeat and able to come home, anxious to reconnect with so many people.
We had wonderful support – a visiting nurse and a physical therapist did his weekly bloodwork and vitals checks and helped him regain his muscle tone at home. Eventually, he was strong enough to resume treatments, and a new regimen with a different set of drugs began. We started making regular treatment runs to the larger hospital, sometimes sightseeing or visiting old haunts along the way. The drugs caused neuropathy, especially in his feet, which cut down on his walking, but we were trying and researching different therapies for that. By December of 2023, he was in remission from the ALL, and the Multiple Myeloma was knocked down to almost undetectable. Both we and the doctors were delighted and relieved that the cancers were under control. Spacing treatments out a bit had also cut down on side effects. We headed into 2024 hopeful that we could find an effective treatment for his neuropathy, and he had gone through testing and was planning to be fitted with amazing hearing aids as well. He was a little tired, but looking forward to travelling for a number of upcoming family events.
But then, life is never simple. A life insurance exam before he retired ten years ago had detected an aortic aneurysm close to his heart. His older brother had died from an aneurysm years before, and we obtained referrals to several cardiologists and surgeons. The aneurysm was small enough that it was not immediately life threatening, but its placement made corrective surgery dicey and dangerous, with a grueling recovery, and possibly some diminished capabilities afterward. So, my beloved opted for regular checks and annual measurements to monitor the size. In November of 2023, the measurements still showed no substantial change. We breathed our annual sigh of relief and went home.
On January 7th, we had a normal day. He cut up vegetables for the soup I was making. He decided to build a fire in the fireplace as we watched heavy snow fall outside. We talked about our upcoming annual February Winter Break visit with our two youngest grandkids. Then late that night, I heard him fall in the bathroom. It was clear he was in pain and I was afraid to move him, so I called 911. We were in the middle of a very bad snowstorm by then, but in the wee hours of the morning, we still got quickly and safely to the hospital. There, a scan revealed that the aneurysm was leaking, and his aorta was slowly dissecting. Nobody would transport him in the storm to a hospital where a specialized surgeon could attend him. So we called the cardiac surgeon who had been monitoring him, for a consult with the ER doctor. That surgeon chose to wait the rest of the night at his hospital, just on the off-chance the storm would clear in time and we would transport. The people in the ER kept my beloved as comfortable as possible. I called my children and my sister, and tried to wrap my mind around what I knew, from many talks with the cardiac surgeon, was probably inevitable with or without surgery.
A little before 6:30 am, the nurses, ambulance EMTs, and doctor walked quietly into his room, turned off the monitors, and stood silently around us while my beloved husband drew his last few breaths.
As the storm moved away that day, our children, their spouses, and our two oldest grandsons all arrived from their homes in other states, and my sister arrived early the next day. We all stayed together for a few days, streaming electronic photo albums on our TV, remembering, and just being together. We decided to wait a bit to do a memorial service, and wrote the newspaper notice together. We prepared meals (with some assistance from friends and neighbors), washed dishes, called and texted extended family and friends, and held one another up in turn, still not really believing he was gone.
I am so appreciative of the many people who have circled around us and kept checking in on on me. I am thankful for all the physicians, nurses, and other medical staff who treated my beloved for years, giving him the best possible quality of life while honoring his choices throughout those treatments. I am also grateful for all the wonderful time we still had after the aneurysm and cancers were found, the time after he came home from his extended hospital stay, and for all those many years before. The time we were together was a gift for me, although I do also know there were more and more days recently that were physically trying for him, and that those days would have continued.
And now, a couple of months after everything turned upside down, things are gradually beginning to have a new configuration. I have been taking stock of my new normal without my beloved life partner. I am not yet ready to decide what comes next, but bit by bit the axis of my life is tilting its way back, and I’m better able to navigate my world, a little at a time. And I’ve had time to reflect on his wonderful life and how well he chose to use it. What a blessing that is.
My message to all of you is this: Don’t wait to actually call and talk to your family and friends, to get together with them, or to let them know (in no uncertain terms) how much they mean to you. Text them, if you must, but hearing your voice would so much better. My beloved was always great at doing those things. Treasure everything about the people you love, even their annoying little habits – those will become precious memories too soon. And if you are postponing trips or retirement for a better time, maybe reconsider, if you can. Nobody wishes they’d spent more quality time at work. Really.
Always remember that tomorrow isn’t promised, and there are no do-overs for so many things in our lives. Don’t leave things undone, or unsaid. Use your time wisely.
Carpe Diem – Seize the Day. My beloved was so good at that, and I’m more grateful for that than I can express.
You must be logged in to post a comment.